“I didn’t know how to deal with the strange looks that everyone would give me. I didn’t know how long I had left to live. There were times I felt vulnerable, and when that happened, negative thoughts flooded my mind,” Chor Meng said. “I’m grateful that my faith, family and friends stayed by my side. I told myself, ‘It’s okay. There are people who are having it worse than you. I must overcome this.’”
It was only later that doctors realised that there might have been some genetic changes, and that there was good news in store for Chor Meng. “In my eyes, a miracle happened [because] I didn’t die even after the two years. Even now, I’ll still be able to live for another 10 or 20 years, or maybe even more,” he said.
Living with his condition is a daily battle, but rather than saying that he’s a strong person, Chor Meng laughed and said that he’s “just a little more persistent than the average person”.
He likened life to a game of Chinese chess, musing: “I’m just a soldier who can only move slowly one step at a time. Like the soldier, I can’t take steps backwards either. I don’t think of being like other pieces on the board that can move around faster and in different directions. My only aim is to make my way onto the other side of the board at my own pace, and I think that’s good enough.”
He admits that his health is still on the decline, but that is it’s “somewhat stable”.
“Compared to 12 years ago, my health has definitely gotten worse, but it’s declining at a slower rate now, and I’m grateful for that alone.”
Click here to watch Part 2 of Chew Chor Meng's interview on Hear U Out.
Photos: Mediacorp, Chew Chor Meng's Instagram
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